October 21, 2013… So much to say

Well it has been almost a month since my last post and geez do I have a lot to share so here it goes. For the news so many are waiting to hear… Scans were done at Ochsner’s and the results were good! Results show chemo is still working to decrease the remaining spots in her bones and no new spots have formed – THANK YOU GOD!!!! Bone marrow results are clear which means that her bone marrow is not producing yucky cancer cells which is also a very good thing! Basically the low dose chemo is going well and doing exactly what the doctors were hoping it would do. We are beyond thankful for this blessing!

Bailey did receive another round of chemo the week after scans and she rocked! The three days of chemo flew by and we didn’t have any issues…again so very blessed! Her counts are still extremely low and her marrow is taking a really long time to recover from all the treatments…with that being said she is having to get frequent transfusions.We know her little body has been through so much over the past 3.5 years which is why we are sort of at a crossroads right now. She currently has 2 bags of precious stem cells left and she could desparately use a boost so to speak. The problem is that until we find a trial she could be eligible for, we hate to use the stem cells just in case they are needed in order to qualify her for the trial (meaning get her counts up high enough so she is eligible to participate in the trial as many trials have strict requirements of what your platelet, blood and ANC count must be) . If we decide to give them now and she continues to receive more chemo (which she needs to keep things stable or improve) then we are taking a chance that her marrow will boost up but eventually become weak again due to chemo depending on how long it takes to get her on a trial…but her marrow is weak and she is requiring transfusions every 2-3 days…so we need to do something. We also found out that the trial in Chicago will not work out for Bailey at this time. The seizures she experienced while on the last trial exclude her from qualifying so we are back at square one for now. Her wonderful oncologist is still researching a few other trials but we don’t have any definite plans for now. Our plan is to take things one day at a time and to continue enjoying every moment. Bailey feels great despite her low counts and we have had really good quality time at home since chemo so we have absolutely nothing to complain about. I know the right doors will be opened in God’s timing and until then we will patiently trust in HIM.

***I hope everyone is getting just as excited as we are about Bailey’s upcoming benefit! There are so many great things planned and so many generous people that have already made this event a huge success. We are looking forward to seeing everyone out at Sugar Mill Pond this Saturday, October 26, 2013 from 10am – 7pm.  The weather is supposed to be fantastic and there will be plenty of gumbo cooking so be sure to come out and spend the day with us. We look forward to seeing you all there!***

Bucks for Bailey Small Flyer