January 28, 2013… By Jesus’ stripes she is healed!

Isaiah 53:5 “The chastisement for our peace was upon Him, and by His stripes we are healed.”

Well it is scan time again. We are leaving for Michigan tomorrow morning. I am so anxious to see what the results will show. Bailey has been doing so good with the new DFMO medicine she has been taking since December and I am praying like crazy she will be able to continue with this treatment. The plan is to do scans on Wednesday and Thursday, get results then decide what’s next. If scans are clear we will get to come home immediately and she will continue taking the DFMO with scans repeated every three months. If the little spot near her liver is still there or any new spots appear, she will have to stay in Michigan and get 5 days of chemo the week of February 4th along with Nifurtimox then we will get to come home to recover before having to repeat chemo again. Of course we are believing in CLEAR scans and NED (No Evidence of Disease) status again!

Bailey has been doing fantastic these past two weeks. Her counts have started to recover to the point of not needing any transfusions. She has not been this way since August of last year so this step in her journey is very welcomed. Her immune system is still pretty low so she hasn’t been able to attend school but hopefully in the next few weeks (if chemo is not needed) she will finally be able to go! Thankfully she has been keeping up with all of her schoolwork with Mimi (during the day while I am at work) and she made Honor Roll! I am so very proud of her….sometimes it is so hard for me to wrap my head around this amazing little girl I have. She has been through so much more than most people ever endure in a lifetime yet still she smiles, laughs and finds joy in the little things. She really is my hero!

Please say some prayers for us as we travel and of course for clear scans. Our faith is in the scripture and God’s promises…I know her healing will come to pass because He has already paid the price on the cross. The facts and/or our circumstances may change, but HIS word and HIS promises will always remain. He has already paid the price for Bailey’s healing so we are declaring that she will live a long and healthy life free from this horrible cancer. She will be a testament to His promises. We will not fear what our future holds because we are putting our trust and faith in the ONE that holds our future. This little girl of mine has such big faith…she was meant for great things and she will fulfill God’s will for her life….despite what statistics say. Thank you for your continued support and prayers…NOTHING IS IMPOSSIBLE!

My Sunshine

January 11,2013….. The waiting game :)

Ecclesiastes 3:11 “He has made everything beautiful in its time…”

So we are still home…yes home home home!!!! Love the sound of that. Unfortunately Bailey’s counts are still pretty low and she is still requiring transfusions so the decision was made to wait until the end of January to head back to Michigan for scans. I was pretty happy about that decision to say the least…for starters it will allow the DFMO more time to work on getting rid of that one spot near her liver so hopefully when we repeat the scans there will be no reason for her to have to do the chemo regiment and she will be able to continue on the DFMO that has been an absolute dream come true in our cancer world….secondly we could really use some time at home without the frequent hospital trips as we have been having to do over the past five months….time to just be together and have our little girl feeling good and having fun. So the plan is to head back to Michigan the last week of January for repeat scans and then decide what the next step will be.

Our holidays at home were very difficult to say the least…everyone and I mean everyone in our household was sick…starting with the twins, then myself, then Bailey and finally Cody. Definitely not the way we had planned our days off but of course we have learned to always expect the unexpected. Thankfully within a week we were all feeling much better but of course it was time for mommy and daddy to go back to work and the kiddos back to school…except for Bay who hasn’t been able to attend at all this year (praying that will change after our trip at the end of January). With her low counts she isn’t able to be in a classroom with other children right now due to her low immune system, but thankfully that is recovering…very slowly…but recovering all the same.

So not much new to report but I’ll take that anyday :) Always remember NOTHING IS IMPOSSIBLE!!!!!

Wanted to share something another NB mom wrote…so fitting for our situation and exactly how I feel no matter what we go through:

“If before you were born, I could have gone to heaven and saw all the beautiful souls, I still would have chosen you…

If God had told me, “This soul would one day need extra care and have special needs”, I still would have chosen you…

If  He told me, “This soul may make your heart bleed”, I still would have chosen you…

If He had told me, “This soul would make you question the depth of your faith”, I still would have chosen you…

If He had told me, “This soul would make tears flow from your eyes that could fill a river”, I still would have  chosen you…

If He had told me, “This soul may one day make you witness overbearing suffering”, I still would have chosen you…

If He had told me, “All that you know to be normal would drastically change”, I still would have chosen you…

Of course, even though I would have chosen you, I know it was GOD who chose me for you” – written by Terri Banish